I ran across an article about a woman who has MD and is in a relationship with a man who is able-body. She was asking him questions about their relationship. His answers were well thought out. He was her caregiver too. This was really unique, to say the least. When a person with a disability is in a relationship, the person is usually a man who is disabled.
A woman is more equipped to take care of a person. I am not trying to be rude, but God gave the woman the ability to have kids and nurture them. You might look at it as a gift, not something that you desire. I am also not saying that this guy cannot be a great caregiver.
My mom had Alzheimer’s for over ten years and my dad took care of her. He loved her very much and it showed through his actions toward her. For example, she ate really slow. I mean two or three hours for a meal. He used to feed her and watched TV or did some cleaning.
Personal Care Assistants
People usually think that taking care of someone is a job. That is not always the case. If a person does it as a job and does not care for the person with the disability, the aide won’t show compassion toward the person with the disability. I will give you an example of what I am talking about.
I have currently three personal care assistants working with me. They like working with me because I treat them like friends which they are. We have to give and take while we work together. There is a mutual understanding between us. It should be in every relationship no matter if there is a person with a disability or not. If somebody is always giving and does not receive, the relationship will fall apart. On the other hand, the place where I live has caregivers who do not like their job and it shows. If you pass them in the hall, they don’t notice you. I am not saying that they have to be your friends.
Living with Love
It is strange how different people react toward people with disabilities. Some people can fall in love with a person with a disability and take care of them like it is nothing. Other people act like it is torture. Do you know why? I truly believe it is how they were brought up. If you were taught that everything is a gift and you should be grateful, they will be compassionated toward the individual. I am not saying that their life was perfect rather their lives might have been totally hell, but their parents taught them a lot.
We all know that life is not a piece of cake for sure, but we have to live life with love in our hearts. If we don’t do that, how will we interact with others when we need them to help us? We might keep losing the help that we truly need. Looking back on the article, the couple knows what love is. The guy understands how MD effects a person so she might not have many more years to live.
Talk About Your Disability
If you fall in love, you should be opened with your disability with the person. Yes, it is scary to do because you might not know how this person will react. The person might be alright with what you tell them or they might say wait a minute, I don’t think this is something that I can handle. Sometimes the person might not know what to think, which is alright. You have to start the dialogue sometime. In my experience, it is to start the dialogue a little and let them ask questions when they are ready. You don’t want to force your disability on them. You never know what could happen to your relationship. It might turn into love or not.
I have talked about being nonverbal, but today I will talk about what you might do in an emergency if you are alone. During the warm months, I am usually out and about on my own. Going to church or going downtown Naperville on a beautiful sunny day is fun, although, the weather is not good for that this year. What do you do when you need help but you are by yourself?
This post is going to be focusing on people who are nonverbal but most of it will be good for any person with a disability. First thing is to have a cell phone on you. Put it somewhere a person can find it quickly. Today’s cell phones can allow you to identify people in your contacts to be emergency contacts. I just recently got a new phone and I have to do that. I know I am bad.
The second suggestion is to make a few small cards on a key ring and put it somewhere in your wheelchair. On the cards, put your name, your address, your disability, and maybe emergency contacts as well. I also would explain how to communicate with you. For me, it is easier to ask me yes and no questions.
Another important thing to put on the cards is to unlock your power wheelchair so they could push you. Besides that, explain how to transfer you. You might have several scraps to undo before transferring you. If you can stand a little, put that on the cards. After you finish the cards, I would laminate the cards so they don’t get ruined by liquid.
Cell Phone Locator Feature
The third thing to do is to turn the location tracker on your phone and your tablet. If you get lost, the police can find you easier. If you don’t know how to turn it on, look in the settings or ask someone who knows how to do it. I think it can save your life.
If a person tries to help you, try to show them where your cards are. You can try pointing to them. If you have a communication system, I would write a few sentences about you and how to communicate with you. Actually, I would have what you wrote on your cards in your communication system in case the cards got lost. Put this information where you can get it easy. If you are like me, I have folders within folders which makes things hard to find. I have my information on the top level of my communication file structure.
I am noticing that people with disabilities don’t feel comfortable going out by themselves. It is understandable but you have to be an adventure in your life. I never was scared to take walks and I had no problem with crossing a busy road. The only thing that I was scared was crossing train tracks when I was living with my parents. I told myself to try to cross the tracks where there was a lot of people around. Once I tried that, I didn’t get worried about doing it again. You have to push yourself in trying new adventures if you are nonverbal or not.
If you have overcome something and are doing it on a regular basis, please tell us what it was and how you overcame it. People need to be encouraged to do it all.
By: Marie Miguel
Mental illness is experienced by one in five adults every year, according to the National Alliance on Mental Illness. It includes bipolar disorder, anxiety, and depression, the latter being the leading cause of disability in the world. And yet, one of the biggest challenges we face with mental illness is the stigmatization surrounding it.
As a society, we still have a long way to go in talking about mental health in a healthy and normal way, and this may be for a number of reasons. People who struggle with mental illness may feel great shame, guilt or weakness in talking about their illnesses or seeking help due to narrow portrayals in the media, or a complete absence of it. The lack of mental health education leads to the belief that mental illnesses are “phases,” can be controlled or can easily be overcome if only they tried. On a larger scale, factors like poor access to mental health care can also contribute to widespread stigmatization.
People with mental disorders already carry a lot of pain, and these things can further worsen it. What we need is more people having healthy and accurate conversations about mental illness and speaking up for those who struggle with it. In honor of Mental Health Awareness Month this May, here are 5 ways you can fight the stigma surrounding mental illness:
- Educate yourself. Mental illness is prevalent: a study estimated that over 80 percent of people will experience it once in their lifetime. Something so widespread is deserving of our focus and education; the more knowledgeable we are, the more we will be able to help those struggling with mental illness and help dismantle its stigma this month and beyond. You can start by reading articles and fact sheets from trusted sources like the National Alliance on Mental Illness and Association of Depression and Anxiety. If you are someone with a mental disorder, you can gently express to others how it is for you to be experiencing it.
- Be wary of the language you use. Language surround mental health is important and even small shifts in phrasing can make a big difference in social perception. For example, saying “He is a person with a disability” rather than “He is disabled” is a form of humanizing language that helps people understand that a person is not their illness, according to American Psychiatric Association. Be conscious of the way you use the words “crazy,” “psycho” or “anxious” which can contribute to the stigma. Furthermore, don’t be afraid to kindly educate others around you if their language is problematic and to remind them it matters.
- Show compassion for those with a mental illness. People who have a mental disorder are often in a great deal of pain, even though they may not show it, and one of the kindest things we can do is to show them that they matter and that their feelings are valid. If you have a friend or family member who you know is struggling with a mental illness, show them your support. Gently encourage them to seek help from licensed, professional and supportive therapists that platforms like BetterHelp.com provide. Ask them how they really are often, and take the time to listen to what they have to say without judgment or criticism. Standing with them and validating their experiences is an incredibly life-affirming act, and will help reduce the shame they may feel.
- Speak up on social media. If you see a social media post or advertisement which negatively or inaccurately portrays mental illness, add in your two cents or write to the broadcasting company. Sometimes, people are unaware that they are contributing to the stigma and are willing to learn what it really is like for someone with a mental illness. Says Facebook user Kathy Smith, “If Facebook has any stories where people make ignorant comments about mental health, then I write back and fill them in on my son’s journey with schizoaffective disorder.” This also means supporting organizations which work to break down the barriers in mental illness, such as To Write Love On Her Arms and NAMI.
- Be honest about your own struggles. Perhaps one of the hardest things to do is to fight the stigma within ourselves. Shame, guilt, and fear are all reasons why we may not speak up about our own mental health concerns, and this can lead to further harmful thoughts surrounding it. Being honest with yourself and trusted friends and family, even though it may be very difficult, is one of the most powerful things you can do fight the stigma within yourself and others. Don’t allow yourself to wallow in shame, but make small, positive steps to normalizing your mental illness: acknowledge that it is a real medical condition, take your treatment seriously, and show by example what it means to live a meaningful life, even with a mental disorder.
culture and society’s views on mental health has slowly and gradually gotten
better, but there is still much to be said and done. With education,
persistence and compassion, we can positively change how we approach mental
illness and dismantle its stigma entirely.
An increasing of installing smart technology in homes is growing daily. Everybody is buying things for their homes to making their lives easy and save money. Does smart technology help people with disabilities to be more independent?
What is smart technology anyway? It is a technology that turns lights on, locks the door, turns the TV on, and many other things from your smartphone or tablet. If you cannot turn something on because you cannot reach it, smart technology can help you with that.
I know what you are saying – “but Chris, it is too expensive. “ Yes, it is a little expensive, but you have to look at the big picture over time. Let’s say that you have to leave a light on in a room where you are in some parts of the day. If you have a smart switch in the room, you can turn it off when you are not in there. First of all, you are saving on electricity. Besides, you are saving on buying bulbs in the long term.
Smart Bulbs vs Smart Switches
There are many options for lights. You can buy smart bulbs or smart switches. A smart bulb costs around $25 and a smart switch costs around $35. Both are on Amazon. What would you buy? Naturally, you would say that you would buy the bulb because it is $10 cheaper. Well, that is not the right one to pick. I will give you several reasons why a switch makes more sense.
First, a switch usually turns on multiple bulbs. If a switch turns on four bulbs, you would have to buy four bulbs at $25 for one bulb so you have to pay $100 versus $35. Second, a switch will last much longer than a bulb.
Philip said that their smart bulbs will last around 15,000 hours. They say it should last fifteen years. I have not seen a bulb last that long ever. So, you can judge for yourself.
Getting Excited Yet
You might be getting excited about this technology, but you are wondering what you need to make your home smart. All you need is a secured internet and a tablet or a smartphone. The internet has to be yours and not your neighbor. The reason why you don’t want to use someone else’s internet is that they could turn on a device without you wanting it to. This would be very bad indeed.
Apple has HomeKit and Google has their Google Home. Both apps work about the same way but I use HomeKit because I use an iPad. Home Kit comes with iPad, iPhone, and iWatch. I heard it might be in the Mac computer later this year
What does HomeKit do? It allows you to control the main functionalities of all your devices in one app. When you install a device, it will have you to download their app for the device. When you do that, it puts the main functionalities in Home Kit. You have to buy devices that have the Home Kit logo on the box otherwise it will not work with HomeKit at all.
The true magic with HomeKit is automation. What automation allows you to put a timer on all of your lights to be turned off at a certain time. Also, HomeKit is smart that it knows when sunrise and sunset occur every day. You can say to turn on a light fifteen minutes before sunset. I find that to be really cool.
One thing that is needed to have automation to work is that you have to have an iPad or Apple TV at home all the time. The iPad has to be set up as a hub for automation to work. It is just a setting to be turned on in settings for HomeKit.
Let’s talk about safety for a minute. If you have a disability that requires you to have a personal assistant to get you up in the morning, you might give the person a key to get in. That might be dangerous but all of us do it. Well, this will be the thing in the past because there are smart door locks. They work basically the same way with any other devices. You can set a timer to unlock the door at a certain time. You could say what about when the power or the internet goes down. In my opinion, it is better to have smart technology in your home then being depended on other people. Yes, it is scary to adapt to change but in the long term, you will be happier.
If you are using smart technology in your home please tell us what you think of it. If you are not ready to take the plunge, what is holding you back? Please leave your comments below this post.
I just ran across an article about a new Netflix show called “Special”. It is about a guy who has Cerebral Palsy and gay. The first show aired on April 12. I watched the trailer and to me, it was just alright.
The character who plays the guy who has CP is Ray O’Connell and actually has Cerebral Palsy. His CP is really minor – he can walk, talk, and use his hands. This show is based on his memoir: “I’m Special: And Other Lies We Tell Ourselves.”
Although this show sounds great, I have a bad feeling about it. I don’t have any problems with gays but having shown with people with disabilities is really new to TV. So, people are getting comfortable with seeing them and learning a lot about disabilities.
Issues With “Special”
My issue is that we are forcing to watch a show that would be a great learning tool for everybody, but if you are religious and are practicing your faith, how can you watch something that is immoral? You can say: “Oh Chris, get with the times.” Should my faith change because society thinks it is OK? I think not. I have to be true to my beliefs.
At a conference a few years ago, I talked to a guy at a conference. He was a person with a disability and transgender. The guy made a statement that stuck with me. He said that the gay community should include people with disabilities because we are fighting for equal justice. I see his position to a point, but the disability community is so different. Our lives require things that are important to us. If I don’t have help every day, I will not get out of bed.
They wanted gay marriages legal. My question is how are their lives different from two people living together? If you think about it, it is the same thing. People live with each other for many years and don’t think of asking for help from the government. Marriage is between a man and a woman period because it is how God wanted it to be. I know that there will be some people who will disagree with me, but I don’t care because it is the truth.
The show “Special” might be great, but it doesn’t have to force the gay lifestyle on me. Most people with disabilities seem to be straight. I am not saying all are straight. A ton of people with disabilities is looking for dates and marriage. Wouldn’t that be a great plot for a show? Hollywood is full of gays, so they think everyone is gay which is not true.
Time has changed for the better for people with disabilities but why do the gay community want to take over everything in our lives. I know some people want to be heard, but how far is too far? This show might be about Ray’s memoir, but they could cut out most of the gay things out. If I wrote a memoir and someone wanted to turn it in a series, but they wanted to cut some parts out, I would understand. Would I be mad? I think yes, but if some parts were deleted to get more people to watch it, I would say sure.
What Do You Think?
Life has good points and bad points, and nobody can receive everything they want. Yes, it hurts, but we all have to adapt to things. Special might be an awesome show, but should we accept the gay life style in every show? If you have a different view on this show or the same view as me, I would like to know your reason for your opinion. Put your comments below this post please.