It is 2019 already and the holidays are all over with. Most people are saying thank God, but some people are saying why are the holidays over? During the holidays, we saw family and friends who we don’t see too often, and we got out more. Since we are back to the normal daily routine, what can we do to help us to grow and enjoy life to its fullness?
Taking a Class
The first thing that you can do is to take a class at your local college. I don’t mean to get a degree, but you can if you want. There are many classes that are an introduction to something. You can most likely take the class online, so you don’t need to get a ride to the college. I took several online courses and I loved them.
If you don’t want to take a class at a college, there are many websites which have short courses that you can go at your own pace. I took several classes on Udemy and the classes are reasonably priced. They have hundreds or thousands of subjects to pick from. Some teachers are willing to answer your questions too. I think this is an awesome way to educate yourself.
The next is to start a blog if you like to write. Many people think that they need a website for a blog, but there are many websites that host blogs for people. One thing that is great is that the website has traffic to it, so people can find you quicker. The reason that I went with a website was that I wanted to set up talks and sell my book and courses.
If you don’t know if a blog is for you, but you want to try, just contact me. I always need some help in writing posts. You can do as many as you like. You will be helping me a lot.
Getting in Fit
We are seeing a lot of commercials about getting fit and exercise more. Being a person with a disability, we have to do therapy, although we usually hate going. Like anyone else, doing exercise more helps all of us to stay fit. I know getting therapy is tricky to get, but sometimes you can get therapy for six weeks and Medicare usually pays for it. I know that is not enough, but you have to be grateful for what you can receive.
If you can work out at a gym or need minimum help from a friend, that might be good for you. We sometimes forget that we are human beings like anyone else, so we can have health problems. With our disability, we could get sick easier but if we work out more, we can be healthy.
Volunteering is a great way to give back to your community. You can help out at church, in a school, in a hospital, and at many other places. One good thing about volunteering is that you don’t need to be worried about making too much money, so you lose your money from the government. It also gives you a sense of helping others. Our country really needs more people who give their time and are not looking for payback.
We are a few days into 2019, it is a good time to figure out what we can do this year to grow and maybe help other people along the way. If we improve ourselves, we can improve our community. If you have other ideas to start doing this year, please put your ideas in the comments below.
Love takes many forms. It can be between a wife and husband, parents and a child, girlfriend, and boyfriend, between siblings, and many other types. When we look for love, we often think that he or she will be this hot looking person. Today I am going to be talking about a boyfriend and girlfriend and two sisters. I think you will enjoy this post as much as I enjoyed researching it.
The first story that I would like to share with you is about Shane Burcaw and his girlfriend Hannah. Now, Shane has a disability called Spinal Muscular Atrophy, where he is losing his muscle mass. Therefore, he is getting weaker every day. He is in his late twenties.
I found his story on YouTube and fell in love with their YouTube channel because they video their lives together. The one thing is that he is funny and living their lives to the fullest. They travel a lot and I don’t mean just in the United States either. They went to Paris and England. At first, I thought it was odd, but as I thought about it, it was not odd. He wants to go to places as much as he could before his body stops him from doing things.
Hannah is his personal care assistant, but she doesn’t consider herself as his aide rather as his girlfriend only. I find this to be remarkable because she loves him so much to do everything for him. In one video, they were in Paris and he had to go to the bathroom. He is really thin, so he could not sit on the toilet, so she had to lay him down on the floor in a public bathroom. That is very gross, to say the least, but she knew he had to go. She didn’t freak out either. If you don’t consider that to be love, then what is love otherwise?
Another thing that is so amazing is Hannah’s mom went to Paris and England with them. she knows how to take care of Shane too. I can’t believe it because what parents would accept their daughter to date a guy, who has a disability that will kill him and then help out taking care of him. You might think they are crazy. If you think about love, it can do amazing things if you let it happen.
April and Rachel
April and Rachel are really close sisters, and April has a disability called Rubinstein-Taybi syndrome. She is nonverbal and really low functioning. She cannot have a normal conversation with her family. Rachel is becoming a speech therapist so that she can help April to communicate better.
If you think about what Rachel is doing, you might be saying that she is nuts for becoming a speech therapist. She is wasting her time and profession on something that might not help her sister. Well, that might be true, but Rachel’s love for April is strong and will do everything in her power to help April. Besides helping April, she will help other people as well.
From a young age, Rachel always knew that she would be April’s legal guardian. Their parents did not ask or push Rachel to be April’s legal guardian rather she volunteered when April turned into an adult. I find this to be amazing because sometimes a young adult is sometimes lazy. They want to take the easy street and don’t look beyond their own lives. I find this to be very sad because everybody needs help during their lives, and they don’t think about what if they need help and nobody is not there to help them.
All About Love
Hannah and Rachel are really similar in the way they act. They love what they do but they love the person who they are helping. These days people are hating their job because it is too hard. If they really think that, they should try being a personal care assistant. I am not saying it is hard, but you have to deal with a lot of shit. Pun not attended! There is a lot of things to help with.
It is Christmas season and it is a time to love one another. I don’t mean that we have to be perfect rather we should help out more and show our love more. In one of the videos, Shane and Hannah were talking about how they met. Hannah saw a video of Shane, and after three hours of watching videos, she knew that she had to write him. When they met in person, they knew that they would have a relationship. Shane’s disability was not an issue at all.
I do believe that people are too scared about the disability itself and don’t want to get to know the person. I had too many times that women say that they loved me but could not deal with my Cerebral Palsy. When I tried to explain that we have to move slowly and learn how to overcome the fears, they didn’t want to try and so they just disappeared. When you are in this experience, you cannot do much, but let them go.
I recently watched a video about how companies are starting to hire more people with Autism in the workplace, and I don’t mean the low paying jobs either. They are computer programmer jobs, lawyers and any other job. SAP, Microsoft, and about 50 other big companies are seeing the benefit of hiring people with Autism. I think this is awesome, but the way that these companies are doing it should be expanded to other disabilities too.
People with Autism are usually smart but lack social skills, so the normal interview process does not work well with these people and I would say other disabilities as well. The average length of an interview is about 30 minutes to an hour and that is so hard to see what a person is capable of doing if the person has problems with socialization or even being nonverbal. The video had a guy who had about 100 interviews and nobody was giving him a chance to show what he could do. I had about that many interviews as well, and after some time, it gets very depressing to be rejected.
5 Week Process
SAP started a program which eliminates the interview altogether. So, what do they do to determine if the person is right for the job? Well, it is a five-week process where the person does problem-solving challenges with other people. I really like this because it is not one thing, so the company really sees what the person can do. This is an awesome way to get people with Autism in the workplace.
If the person with Autism gets the job, the company has a buddy program where an employee is there to help the person out time to time. The employee feels good about helping out. One woman, who is helping out in the buddy program, has a son with Autism and hopes that he will get the same opportunity when he gets older.
Another great thing about these programs is that people who have Autism can socialize with each other after work. I am not saying that this is always needed, but it does help.
The video said 97% of the people with Autism get hired actually stay at SAP. I am shocked that companies are not hiring more people with disabilities. I already talked about this in many other blog posts and the employment rate is super low. The statistics show people with disabilities work hard and are loyal to the company. Why aren’t companies hire more people with disabilities? SAP said they are planning 600 people with Autism.
While I was watching the video, I was wondering one thing. That is what is the motivation of doing all of this? If it is to hire the very bright part and that means to hire people with Autism or it is to prepare a process to hire more people with disabilities in general, I don’t know. I am not saying what they are doing is bad, but they never said that they are going to expand the program to other disabilities. When they interviewed Microsoft, the woman who talked was deaf, and she didn’t comment about other disabilities. Naturally, it was for a segment on a morning TV show. So, they didn’t have time to ask about other disabilities to give hope to people with disabilities as well.
We have come a long way since the ADA was passed, but there is so much more to accomplish. I praise what SAP is doing among other companies. I feel that we have to let them know that there are other people with disabilities who want the same opportunity as people with Autism in the workplace. The way that I see it is that they are discriminating now. If you feel that too, please leave a comment below.
It is Christmas season again and a just wonderful time of the year. This season is a time of giving. As a person with a disability, we are usually on the receiving end throughout the year mostly. We have personal care assistants helping us, our family members helping out, and sometimes organizations drop off food time to time. Since it is the time of giving, we should try to give back, so how do we do that?
Giving from the Heart
Most people think that giving requires money. It doesn’t require money necessarily, but it does help. You must be wondering how do we do that? One way is to be nice to others. We can smile more and say thank you often. People do recognize these things and remember them. We often think we have to do things in grand fashion, but it is not the case at all. Actually, people don’t like things in grand fashion.
The next way is to give a person to talk without being judgmental. Last week one of my aides had a serious accident. She was not hurt really bad although her car was damaged pretty much. Her insurance company has not gotten back to her. I know a little bit about insurance, so I can listen to her and give her advice when I can. I am not saying that you have to give advice, but people usually want someone to listen to them.
Home Made Gifts
Since it is a time of giving, we can give small gifts or homemade stuff like chocolate chip cookies or brownies. I know you are saying that you cannot bake but you can get an aide or someone else to help you. If you cannot find someone to help you, maybe have the person who is getting the gift to help you and surprise them at the end by saying these are for them. I think they will love it from their heart.
This time of the year is to give love to everyone. I love the movies on the Hallmark channel and I know they are corny, but if we are that nice like in the movies, this world would be a better place. I know some of you are doubting it, but if we don’t try, how will we know it won’t work. Since it is a time of giving, the movies often show this, maybe we should try to give more from our hearts.
The Perfect Gift
Christmas is a time when God sent His own Son down to earth as a baby. God did not have to do that, but He loves you and me so much that we have to imitate this gesture toward others. Being disabled is hard I know, but it doesn’t stop us from being kind and giving to others.
Believing in Ourselves
When I was working at HSBC, people used to say that I inspire them to work harder from looking at what I was doing. Sometimes I feel we really don’t give ourselves credit for what we do. I know that I’m a part of this group, but we are people with disabilities and we should show our appreciations brightly, so everybody will see.
We have a little more than two weeks till Christmas, so what will you do to show your appreciation to others?
Last few weeks have been kind of stressful because my dad had an accident at home and it was really shocking when I learned about it. As a person with a disability, you cannot just go and take care for your loved one or just visit them when you want to. The bible mentions that we have to take care of our parents when they are old. So, how do we do that if we need help ourselves?
A month ago, my dad was bringing up laundry from the basement and he tends to put one of his foot behind the other foot. He was near the top of the stairs and his foot did the movement. Naturally, there was nothing to put his weight on, so he fell down the stairs. He didn’t black out or anything like that. He just got up and called 911. Dad went to the hospital, and they said that he has a fractured vertebra in his neck and a torn rotator cuff.
They also found a blockage in his neck. If he did not have the fall, we wouldn’t know about the blockage and who knows what would happen then. God works in mysterious ways and you wonder why did He allow this accident to happen.
My dad is in a rehabilitation center for two weeks now and he might go home soon. As I said, I cannot just go and see him whenever I want or take him to his doctor visits. Isn’t it my responsibility as a son to do that? At the same time, I know that I’m a person with a disability, so I don’t have the ability to do what I want.
What can we do in similar situations? There are a few things that I am trying to do, and the first thing is I am trying to see him at least one time a week. Although it is difficult to get a ride there, I haven’t missed a week yet. Last week when I went there, we had a good conversation and my aide left us by ourselves. It was very good because when he used to come over, I had a lot of things that he had to fix. He could not talk and fix something. So, it is just nice to just talk.
I am finding it difficult to get updates from the doctors. Since a guy from dad’s church is taking my dad to his doctor appointments, he is not going in with dad. I am hearing everything from dad and he is 89 so I don’t think that he is remembering things as he should. To me, that is the most frustrating thing because I am hearing everything from him. When I am asking questions, he doesn’t know the answers. I cannot get angry at him because doctors often talk really fast and you don’t have a lot of time to ask questions.
My dad is not a person who is into computers a lot. Actually, a few years ago, I gave him one of my old iPads. He learned how to message me with it. We set up the WIFI for him in the hospital and then at the rehabilitation center. We can communicate with each during the week and find out what is going on with him. It is working pretty well although he is having PT and OT every day and seeing several doctors, so he is keeping busy.
The tricky part of having him going home is how can I keep him safe. He said that his friend from church would come over and help dad since he is retired. I told my dad to come and stay by my place. He said that he doesn’t want to bother my aides. They all said that he would not be a problem, so I will keep trying to get him to stay here.
As a person with a disability, it is really difficult to look over our loved ones, so we have to do our best and let other people help. Although, we have to do what we can to help our loved ones. It might be difficult, but we have to do our best. For information on how to win the lotto check out Reglementierungswut im legalen Glücksspiel: Suchtprophylaxe oder Volkserziehung?