March is Cerebral Palsy awareness month. I know you are saying so what – it is just a month that does nothing important. I feel that too since we don’t see much improvement in treatments per se, but we are seeing a lot of news about kids with Cerebral Palsy doing something great.
One teenager who has Cerebral Palsy and is the captain of his school weight lifting team. His coach videoed him in practice and it went viral. Another boy in junior high is walking around with a walker instead of a wheelchair. These two stories might sound funny, but for these boys, it is a great achievement. I feel that people see something like these, they say how nice and blow it off.
My Own Achievement
I remember one time – I was around eleven years old and I just had an operation on my hamstrings. My physical therapist at Easter Seal made a bet with me. If I stood handing onto a chair all by myself for a certain number of minutes, we would go to McDonald’s. What kid does not like McDonald’s? I loved McDonald’s, so I accepted the bet and accomplished it. I was the happiest boy on the planet.
People look at others who win the World Peace Prize or win the gold medal in the Olympics as great. They are great. There is no question about it, but people with Cerebral Palsy are great in their own way. So, is Cerebral Palsy Awareness Month helpful? The answer is yes. It is a time to show that Cerebral Palsy is a condition that can be overcome by hard work and support by one’s family.
For me, if my parents did not love me and did not push me, I would not be able to do what I am. That means a lot to me. I just ran across an article about a woman who had Cerebral Palsy and died in November. It was because she had been neglected by her mom and two other women. They are charged with second-degree murder, conspiracy to commit second-degree murder, cruelty to the infirmed, and cruelty to a juvenile. As I read the article, I thought how anyone in their right minds could do something like this?
Cerebral Palsy Month
If you are still thinking that Cerebral Palsy Awareness Month is dumb, please think again. I don’t know the reason why they murdered the young woman. Most likely, they were taking care of her for years and got tired of it and had to end it. The article didn’t give a reason, but that is my opinion.
This month is to educate people about Cerebral Palsy so things like this will not happen again, but we know it will happen again. We also know that CP effect people really different so if someone knows a person with mild case of CP and meet a person with a sereve case of it, the person will be shocked. It is not the fault of the person who is shocked. Even I sometimes am shocked if I meet someone who has Cerebral Palsy really sereve It is not my fault to be surprised.
That is how big difference CP can be from a person to another. When a family finds out their child has Cerebral Palsy, it is really scary to find out and don’t know how it will affect your child. When my parents found that I had CP, my mom cried all the way home and my dad didn’t know why. He didn’t even know what it was. He just thought that I would get better. After they did research, he finally realized I would never be a normal son.
I ran upon an article about giving funding for therapy to children with Cerebral Palsy and Spina Bifida in Utah. If the bill passes into law, it would be the first law in the country that would allow money for therapy. I think that this is awesome in so many ways.
Cost for Therapy
First, therapy sometimes would cost $50 or more per session. This might seem to be high, but is it? A therapist cannot be someone off the street rather therapists go to school to become an expert. They don’t make a really good salary. You have to remember that the organization has bills to pay among other things. Do I think that the cost of therapy is too high? Yes, I do, but I do understand what the organizations have to do to stay in business.
If this bill passes, it will really help families. Some children require physical therapy, occupational therapy, and speech therapy. If one therapy costs $50 and the child needs all three therapies, it would cost the family $150 a week. Now $50 most likely is low so it might be much higher
CP and Therapy
People don’t realize that children with CP need ongoing therapy because without being properly stretched out, their bodies will tighten up again. Between therapy sessions, the parents have to give the child therapy as well. So, this is ongoing process to allow the child to improve their lives.
I think that Utah is doing something that all the state ought to be doing. The reason why I say this is because if the child learns how to do something on their own, down the line, they might not require a lot of help. Yes, this is not the answer for sure, but without having therapy the child’s body will be worse. The lawmakers don’t understand this at all because they only see money going out. Yes, money is going out, but at what rate is it going out?
It is so difficult to figure out how much money is going out. If the child has therapy, the money is going out earlier then a child without therapy. Later in life, the child who had no therapy might have more medical issues. I don’t know how true this is, but this seems more logical to me.
Let’s just forget the money for a few seconds. Therapy helps children and adults to feel better overall. When I had therapy, I felt much better after it, and besides that, I ate better. Now, what does eating better do to the body? It helps the body to stay healthy and strong. Is this what the parents want for their child? Absolutely, who wouldn’t? Having therapy, it sparks independence.
Now, independence is the key for therapy. Without therapy, a child won’t be able to see what they could do. I had therapy since the age of three until I got out of college. I saw progress throughout my early years, so I knew if I wanted something, I had to work for it. We never saw huge progress, but I did not have to see huge gains to push myself to be more independent. That was why I went away to college because I had the drive stemming from having therapy.
I think that parents never realize what therapy is doing to their families until they step back and think about it. For me, I hated it so much that we had major fights. Looking back, I was wrong in fighting, but kids don’t realize what is good until they grow up. Parents, please don’t stop giving your children therapy because they hate it. It is necessary for their future. I hope Utah will pass this law because it will change many lives for the better.
These days bullying is getting worse and it is not improving. Bullying is not new – it’s going on for decades. My dad was bullied when he was a teenager and he is almost 90 years old. In his time, kids did it for fun and would forget it. Today kids can do more damage than in dad’s time or even my time.
I Was Bullied at School
Yes, I have been bullied inhigh school, but it was not like today. I had my second power wheelchair and I was not good at driving it especially when the halls were jam packed with students. Naturally, I got the finger and was called names. After the moment, it would be forgotten. That was what I remember it to be.
With technology growing, bullying is seen by more students than ever before. When I was in high school, one or two students would see it and the other students really didn’t care what happened. Today students have their phones in their hands, so it is easy to take a picture and send it to others. Rather having a good few students seeing it, now you have a few hundred students or more seeing it. The incident has grown into a big mess. It just happens with one button press.
13 Reasons Why
I just watched the series on Netflix called “13 Reasons Why”. It is about a teenager girl who took her life after been being bullied. Before she killed herself, she recorded what made her to do it. It was not just one thing that lead her to do it, but it turned out that many things caused it.
When I watched it, there was one thing that came to my mind, and that was, where was God in all of this? He was nowhere to be found. The jocks were using the girls all the time. They didn’t know what rape was. Besides the parents were not involved in their kids’ lives. When the kids said they have to go somewhere, they just let them go.
What can we do to lessen bullying? Some people want to eliminate bullying all together, but in my opinion, that won’t happen. You can ask why not. It is because we are all human beings and have flaws. You then can ask how do we slow it down.
First of all, get involved in your kids’ lives. Don’t act like you know your kids very well. Ask them the hard questions and listen to their answers. Also, you have to watch their bodies because when they lie, you can notice it. Another thing is to have dinner together. I don’t care if it is only one night but have it on your calendar. If something comes up, tough. Family time is so important that it cannot be canceled.
Parents should be on their kids’ social media or don’t let them have it at all. I am sure that some parents would say that I am cruel. I would like to be cruel and still have my kids safe. In the series, the parents of the teenage girl didn’t know her at all. Why was that? There was no communication between them. Yes, kids do need privacy of course, but they also need guidance. When I got my condo, I was 41 and the first few years, my dad watched me like a hawk with my money and what I was doing. I hated it a lot, but it did help me to be a better person with money. I am not saying that I am awesome with money, but I can control it a lot better.
Teenagers with Disabilities
What if one of your kids has a disability and is being bullying, what do you do? Your teenager might have a mild case of CP and walk around with a limp. That limp is the cause of the bullying because students are calling your teenager old man or old woman. You are thankful that they can walk around but at the same time, you know your teenager might lose their want to walk. What should you do? I would keep giving them the confidence to walk. The bible says that life is a race and we have to cheer each other on. My mom always cheered me on no matter what happened. To me, that helped a lot and even now I can hear her cheering from heaven.
If you still see your teenager struggling with the bullying, you should go to the school, and talk to them about it. You are your teenager’s voice when it comes to bullying. I think that all parents should be a part of their kids’ education and I don’t just mean if they have a disability. I talk about this a lot in my talk about education because it is really important.
Another thing that is a must, is pray for your kids. I know it sounds a dumb idea, but it really helps. Knowing that your kids are in God’s hands and will guide them through the rough times. With God by their side, they will be safe and overcome the hurtful comments they hear. Sometimes I feel if we can get back to morals and respect, most of our troubles will go away. If you don’t think that, I challenge you to try to change your life and see if it makes a difference. I know it is really hard, but I see a difference in my life.
Bullying is not just for kids, but it happens to everybody. You might not think you are bullying other people. Sometimes we are looking at life through rose color glasses. We have to see look how it really is. Yes, it might be really hard, but we have to see the truth in us so that we can change. Take a few days to reflect on this post and then try to make the change that you feel is necessary. Remember one thing and that nobody should be bullied ever.
The United Kingdom has done research on adults with Cerebral Palsy and depression. They say there are a higher number of people with Cerebral Palsy and who have depression than other people. They seem to be trying to link Cerebral Palsy and depression together.
Before I go any further, let me make it clear that I am not a doctor and this post is just my observation through my life and see what God has done in my life. I also know somewhat life in the United Kingdom is like by watching videos and reading articles on the internet. With that being said, I am not saying this is going to make sense or not.
In the article on “Cerebral Palsy News Today”, they reviewed some findings that were published in the JAMA Neurology. Researchers showed that living with a long-term disability such as Cerebral Palsy is associated with a wofold to threefold increase in the likelihood of having depression or anxiety. Since Cerebral Palsy happens around birth, it is a long-term disability.
They used 4.4 million people in this research which was 7% of the United Kingdom. This population was gathered from 1987 to 2015. From this population, there were 1,705 adults with Cerebral Palsy and 5,115 adults without CP. They found that depression and anxiety occurred in 19.6% and 16.2% of adults with Cerebral Palsy and without intellectual disability compared to 17% and 13.4% in the matched control. The research also showed that people with Cerebral Palsy and an intellectual disability had a lower risk of having depression or anxiety. There was 13.3% and 12.2% compared to the matched control which was 16.6% and 14.3%. The article said that they have to do more research to understand why.
Depression and Anxiety
There is an abundance of depression and anxiety around the world. Everybody seems to know someone who has depression. It is getting worse as the time goes on. I have an idea of why this is happening and that is the family is falling apart and there is no support within the family. So, nobody is helping each other. Years ago, the family would have dinner together and discuss the day.
Decrease of the Family
Today the family is running the kids off to practice so they have to pick up dinner on the way. The conversation is not happening at all. Kids are seeing a lot of things at school that they should not see. They don’t know if it is good or bad because the parents are not teaching their kids at home. They are relying on the school to teach them. Who knows what the school is teaching them? Are they teaching something that is against your beliefs? The parents are not looking at the homework that their kids have because they sometimes don’t have the time to look at it. It makes me sad because my parents helped me to learn. Naturally, they had to help because I couldn’t turn the pages, but there were a few times that I didn’t want to study anymore. They encouraged me to push on.
Doing Away with God
Another thing that is missing from our lives is God. People can say that God is not real. I see signs in my life that shows that God is real, and I have a purpose in life. If you do not have a purpose in life, what helps you to get up in the morning? That’s right – nothing!
UK and US
In the United Kingdom and in this country, the government wants to break up the family and turn their backs on God. Why are these things happening? If the family does not exist, people will be more like robots which do things that someone tells them to do.
People are not robots and we want the love of the family to help us to grow. The United Kingdom population is not growing as it should. If there is no growth within the family, the individuals will get depressed and don’t see a light at the end of the tunnel.
The research shows that people with Cerebral Palsy have a higher chance of getting depression and anxiety. Let’s just talk about facts. People who have disabilities don’t get out and socialize. They rely on people visiting them. If the family is small and is not bonding together, the person with a disability is alone a lot. Naturally, the person will get depressed. When I don’t have company over, I get depressed, but it is not caused by my Cerebral Palsy. People need other people who love them around.
To say that Cerebral Palsy and depression are linked together, it is ridiculous. I think we have to look at why the family is running falling apart. Just maybe we could help people with depression. Taking drugs will help so much and we will not get to the root of depression. We know that there is an unbalanced chemical in the brain. Our amazing body can help itself if we give it the love that we need. I am saying that this is my opinion and I can be way off base, but this is what I believe in. If you have a different opinion, please leave it in the comments below.
Last few weeks have been kind of stressful because my dad had an accident at home and it was really shocking when I learned about it. As a person with a disability, you cannot just go and take care for your loved one or just visit them when you want to. The bible mentions that we have to take care of our parents when they are old. So, how do we do that if we need help ourselves?
A month ago, my dad was bringing up laundry from the basement and he tends to put one of his foot behind the other foot. He was near the top of the stairs and his foot did the movement. Naturally, there was nothing to put his weight on, so he fell down the stairs. He didn’t black out or anything like that. He just got up and called 911. Dad went to the hospital, and they said that he has a fractured vertebra in his neck and a torn rotator cuff.
They also found a blockage in his neck. If he did not have the fall, we wouldn’t know about the blockage and who knows what would happen then. God works in mysterious ways and you wonder why did He allow this accident to happen.
My dad is in a rehabilitation center for two weeks now and he might go home soon. As I said, I cannot just go and see him whenever I want or take him to his doctor visits. Isn’t it my responsibility as a son to do that? At the same time, I know that I’m a person with a disability, so I don’t have the ability to do what I want.
What can we do in similar situations? There are a few things that I am trying to do, and the first thing is I am trying to see him at least one time a week. Although it is difficult to get a ride there, I haven’t missed a week yet. Last week when I went there, we had a good conversation and my aide left us by ourselves. It was very good because when he used to come over, I had a lot of things that he had to fix. He could not talk and fix something. So, it is just nice to just talk.
I am finding it difficult to get updates from the doctors. Since a guy from dad’s church is taking my dad to his doctor appointments, he is not going in with dad. I am hearing everything from dad and he is 89 so I don’t think that he is remembering things as he should. To me, that is the most frustrating thing because I am hearing everything from him. When I am asking questions, he doesn’t know the answers. I cannot get angry at him because doctors often talk really fast and you don’t have a lot of time to ask questions.
My dad is not a person who is into computers a lot. Actually, a few years ago, I gave him one of my old iPads. He learned how to message me with it. We set up the WIFI for him in the hospital and then at the rehabilitation center. We can communicate with each during the week and find out what is going on with him. It is working pretty well although he is having PT and OT every day and seeing several doctors, so he is keeping busy.
The tricky part of having him going home is how can I keep him safe. He said that his friend from church would come over and help dad since he is retired. I told my dad to come and stay by my place. He said that he doesn’t want to bother my aides. They all said that he would not be a problem, so I will keep trying to get him to stay here.
Life needs socialization, and I don’t mean just parties but actually talking to others. We as human beings, learn how to socialize as we are growing up. With people with disabilities especially when they are born with a disability, they usually don’t learn how to socialize right away. Since people with disabilities are behind the eight ball with socialization from the start, how do you increase socialization?
You might be asking why people with disabilities are behind the eight ball with socialization when they are young. Let’s talk about Cerebral Palsy for a moment. When babies start to crawl, they explore everything and anything, besides that they crawl to a family member. That starts socialization. If a child with Cerebral Palsy, they don’t have the ability to crawl so they have to wait for family members to come to them. When a child who can crawl, they make people laugh with what they do. This is difficult for a child with a disability, but it is not impossible. If the child is bright, they might be aware of their surroundings and learn how to interact with somebody.
Play With Your Child
What if your child is not interacting with others, what do you do to help them? Well, you can try to play with them more. If they have a favorite stuff animal, have them reach for it and if they touch it, give them a hug or tickle them. This is like rewarding for doing something good. By doing this, you are doing two things for them. First, you are having them interacting with you. Second, you are having them using their muscles to reach for the stuffed animal. If they have Cerebral Palsy, it takes a lot of time to have their muscles to repeat the action automatically.
As the child grows up, try to introduce them to new things like camp, boy scouts or girl scouts, or even a neighborhood teenager center. When I was a teenager, my dad took me to a place for teens to hang out. They had a pool table, games, and music. My dad stood me up and held my hands on the stick while we played. Actually, it was a form of therapy, but it was fun too. The other kids were nervous at first, but as I went there more, they began to be comfortable with interacting with me.
Socialization Not Important
You might be saying that socialization is not really important. I think it is and here’s why. If your child has Cerebral Palsy and will always need help with their daily activities, they will interact with others. If they cannot hold a conversation or even acknowledge that someone is with them, the caregivers most likely will quit quickly. There are so many things that go into having good personal care assistants. That is why I created an online course that will walk you through every step of the way to hire someone.
Sometimes a person can get them in a rot with others and it might affect friendships. Everybody has bad times because we are human beings with flaws. Recently, I was in a funky mood and one of my aides noticed it and we had to talk about it. That talk really helped me. If somebody does not know how to socialize properly and deal with changes in their lives or other people, it might affect their lives really quickly.
Employment Needs Socialization
What if your child will work when they grow up? Do they have to socialize with others? Of course, they do! It doesn’t have to be a job in the corporate world, but they can be a person who welcomes you at Wal-Mart. Actually, the job at Wal-Mart needs you to be really social because when people come in, you have to say hi to them. In the corporate world, you have to rub shoulders with others to climb the corporate ladder. If you don’t do that and just sit in your cubicle, nobody will remember you when promotions come.
The bottom line is that socialization is very important to all of us. People with disabilities face difficulties with socialization. With learning how to socialize from an early age, their lives will be enriched as they grow up. As a parent of a child with a disability, you really want them to succeed in life and socialization is just one way to do it. For information on how to win the lotto check out Von den Millionen, die niemand haben will – Augsburg – City – stadtzeitung.de