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Adult Changing Tables Are a Good Idea

Adult Changing Tables Are a Good Idea

When you fly and have several stops to get to your final stop, you feel all dirty and need to change. If you are an able body, you can change in the bathroom without any trouble. When you are a person with a disability, it is really difficult to change in a bathroom...

What is PBIS and Can it Help ALL Students

What is PBIS and Can it Help ALL Students

It is so fun to know what your I.Q. is and we sometimes ask our friends what their I.Q. is as a joke. What are these statistics for and does it have any importance for how smart we are? I will answer the latter question first. The answer is no. There is no evidence...

Surprised By a New PCA

Surprised By a New PCA

What if your case manager just changed your primary personal care assistant (PCA) agency on you without telling you, what would you do? If you are not familiar with me, I live on my own in a building called Katharine Manor Apartments. I hire my own aides and pay them....

Bullying — Can We Actually End It?

Bullying — Can We Actually End It?

These days bullying is getting worse and it is not improving. Bullying is not new – it’s going on for decades. My dad was bullied when he was a teenager and he is almost 90 years old. In his time, kids did it for fun and would forget it. Today kids can do...

Is Cerebral Palsy Linked to Depression?

Is Cerebral Palsy Linked to Depression?

The United Kingdom has done research on adults with Cerebral Palsy and depression. They say there are a higher number of people with Cerebral Palsy and who have depression than other people. They seem to be trying to link Cerebral Palsy and depression together. ...

It’s Time of Giving – How Can We Give the Right Way?

It’s Time of Giving – How Can We Give the Right Way?

It is Christmas season again and a just wonderful time of the year. This season is a time of giving. As a person with a disability, we are usually on the receiving end throughout the year mostly. We have personal care assistants helping us, our family members helping...

USEFUL LINKS

General Information About CP

United Cerebral Palsy has a site that is filled with useful information about CP. They explain the different types of Cerebral Palsy. They can help you to find assistance if you need it. I say this site is the main place to learn what CP is all about. 

Cerebral Palsy is a neurological disorder marking muscle coordination. In most cases, cerebral palsy is caused by brain damage that develops while the baby is still in utero or during or shortly after birth. Comprehensive information about cerebral palsy and most common types can be found at Cerebral Palsy Guidance.

Cerebral Palsy Group is a robust site that provides “high quality, medically-reviewed data” on everything related to CP, as well as financial and legal help, treatment and therapy resources. There is a number to speak with a case worker as well.

Inspiration & Advice from Community Members and Parents of People with Disability

Tamera Weeks has an adult daughter with CP. They have a YouTube channel showing the day to day struggles with CP.

Charisse has CP and also has a YouTube Channel. She shows people what a person with CP can do. Her videos are really fun to watch.

Wonder Moms is a site created by 3 moms. They all have special needs children. Their site is filled with useful posts for parents.

Barton and Megan Cutter are a married couple. Barton has CP and they have a consulting business. They do talks around the country. One thing that I really like about them is their love for each other.

Accommodations & Assisted Living

About Assisted Living is a wonderful site to learn how to take care of a child with a disability as well as elders.

Illinois Independent Living Center aka Katharine Manor is a building that was designed for people with disabilities to live on their own. I am currently on the board.

Nationwide Lifts is a company that modifies houses for people with disabilities. They have stairs lifts, elevators and many other things to help people with disability.

 

Chris Lenart, Founder of Disability Awareness, speaks to students, youth groups, conference audiences, faith-based institutions and the workplace to promote disability awareness.

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