For People with Disability

PEOPLE WITH DISABILITY | LATEST POSTS

Meet Jason Swann – An Amazing Story

Meet Jason Swann – An Amazing Story

Imagine being wakened up by a phone call from a hospital at 2 o'clock in the morning on a cold day in December. All they say is to come to the hospital right away. It is your son. What would you do? You don’t know what happened. It would freak me out for sure, but...

Hearing Some Heartbreaking News is Hard

Hearing Some Heartbreaking News is Hard

Earlier this week, I received a message from a friend of mine who went to college with me. Mike got disabled from a car accident when he was in high school. The accident left him paralyzed from the neck down. He received his law degree and he worked in Chicago. After...

Look Beyond Facial Distortions

Look Beyond Facial Distortions

We all say that this guy is good looking or this child is so cute. These comments make a person feel good about their selves and they long to hear it. But there are times when people say things that are really degrading to a person. I found a great podcast called...

Best High School Reunion Ever

Best High School Reunion Ever

This past Saturday night I went to my 30-year high school reunion. Yes, I am that old. I went to it not expecting too much because it was in a big group, I feel I am left behind because it is too noisy.  Talking When I got there, it was in a small room in an Irish...

Love Someone With a Disability

Love Someone With a Disability

I ran across an article about a woman who has MD and is in a relationship with a man who is able-body. She was asking him questions about their relationship. His answers were well thought out. He was her caregiver too. This was really unique, to say the least. When a...

USEFUL LINKS

General Information About CP

United Cerebral Palsy has a site that is filled with useful information about CP. They explain the different types of Cerebral Palsy. They can help you to find assistance if you need it. I say this site is the main place to learn what CP is all about. 

Cerebral Palsy is a neurological disorder marking muscle coordination. In most cases, cerebral palsy is caused by brain damage that develops while the baby is still in utero or during or shortly after birth. Comprehensive information about cerebral palsy and most common types can be found at Cerebral Palsy Guidance.

Cerebral Palsy Group is a robust site that provides “high quality, medically-reviewed data” on everything related to CP, as well as financial and legal help, treatment and therapy resources. There is a number to speak with a case worker as well.

 

For Treatment & Therapy

Easter Seals is a place to receive therapy. They are nationwide, and they handle many types of disabilities, but Cerebral Palsy is the most common disability they treat.

DuPage Easter Seals is in Chicago, Illinois. They treat kids with CP and other disabilities. I went there for many years. 

Inspiration & Advice from Community Members and Parents of People with Disability

Tamera Weeks has an adult daughter with CP. They have a YouTube channel showing the day to day struggles with CP.

Charisse has CP and also has a YouTube Channel. She shows people what a person with CP can do. Her videos are really fun to watch.

Wonder Moms is a site created by 3 moms. They all have special needs children. Their site is filled with useful posts for parents.

Barton and Megan Cutter are a married couple. Barton has CP and they have a consulting business. They do talks around the country. One thing that I really like about them is their love for each other.

Accommodations & Assisted Living

About Assisted Living is a wonderful site to learn how to take care of a child with a disability as well as elders.

Illinois Independent Living Center aka Katharine Manor is a building that was designed for people with disabilities to live on their own. I am currently on the board.

Nationwide Lifts is a company that modifies houses for people with disabilities. They have stairs lifts, elevators and many other things to help people with disability.

There is a good article about how to make your home more accessible for elderly family members. It is by Kris Lindahl.

Finding Aides

If you are in Illinois and want to hire your own PCA, this Health Care Worker Database from Illinois Department of Public Health is simply a must. It allows you to find out if the PCA is in good standing with the state. You can also report criminal actions against a PCA.

Caring is a website that helps seniors find aides. This page is for Illinois, but they are in other states as well.

 

Legal Information

If you believe you suffered an injury from medical error during birth, have a look at the Birth Injury Justice Center site.

This law firm specializes in disability claim denials.

Cerebral Palsy Group is a robust site that provides “high quality, medically-reviewed data” on everything related to CP, as well as financial and legal help, treatment and therapy resources. There is a number to speak with a case worker as well.

 

 

Disability & Employment

Dreamscape Foundation is an organization that helps people with disabilities to find jobs. They also help people with rare disabilities have a better life.

Monster.com offers tips on how to get a job if you are a person with disability. 

Disabled World offers information on equal employment opportunity and disability, as well as links to resources from other worldwide employment organizations and agencies, including websites for persons with disability looking for work, disability job vacancies, and jobs working from home. 

EXTERNAL POSTS BY CHRIS

Chris Lenart, Founder of Disability Awareness, speaks to students, youth groups, conference audiences, faith-based institutions and the workplace to promote disability awareness.

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